RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases

نویسندگان

  • D Taruscio
  • C Morciano
  • P Laricchiuta
  • P Mincarone
  • F Palazzo
  • CG Leo
  • S Sabina
  • R Guarino
  • J Auld
  • T Sejersen
  • D Gavhed
  • K Ritchie
  • M Hilton-Boon
  • J Manson
  • PG Kanavos
  • D Tordrup
  • V Tzouma
  • Y Le Cam
  • J Senecat
  • G Filippini
  • S Minozzi
  • C Del Giovane
  • H Schünemann
  • JJ Meerpohl
  • B Prediger
  • L Schell
  • R Stefanov
  • G Iskrov
  • T Miteva-Katrandzhieva
  • P Serrano-Aguilar
  • L Perestelo-Perez
  • MM Trujillo-Martín
  • J Pérez-Ramos
  • A Rivero-Santana
  • A Brand
  • H van Kranen
  • K Bushby
  • A Atalaia
  • J Ramet
  • L Siderius
  • M Posada
  • I Abaitua-Borda
  • V Alonso Ferreira
  • M Hens-Pérez
  • FJ Manzanares
چکیده

RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases D Taruscio, C Morciano, P Laricchiuta, P Mincarone, F Palazzo, CG Leo, S Sabina, R Guarino, J Auld, T Sejersen, D Gavhed, K Ritchie, M Hilton-Boon, J Manson, PG Kanavos, D Tordrup, V Tzouma, Y Le Cam, J Senecat, G Filippini, S Minozzi, C Del Giovane, H Schünemann, JJ Meerpohl, B Prediger, L Schell, R Stefanov, G Iskrov, T Miteva-Katrandzhieva, P Serrano-Aguilar, L Perestelo-Perez, MM Trujillo-Martín, J Pérez-Ramos, A Rivero-Santana, A Brand, H van Kranen, K Bushby, A Atalaia, J Ramet, L Siderius, M Posada, I Abaitua-Borda, V Alonso Ferreira, M Hens-Pérez, FJ Manzanares

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عنوان ژورنال:

دوره 9  شماره 

صفحات  -

تاریخ انتشار 2014